May 27th 7:30 pm

We are still in rehab! And things are just getting better everyday. So, something pretty funny happened today. Acey was in his power chair (wheel chair) and he had it tilted back just a little and when it's tilted back it goes into turtle mode which is so slow. So I thought I'd turn up the speed so I cranked it all the way up and of course nothing happened because the chair was still tilted. Then I remembered that it couldn't be tilted so I put the chair down. I then told Acey he was good to go. Now at this time I had forgotten that I had cranked up the speed to max. So Acey pushed on the throttle and took off so stinking fast I mean these chairs can really move. He has a hard time moving his hand and he couldn't stop right away so me and the OT was running down the hall to try to help him stop. Oh, it was the funniest thing ever! I'm sure you had to be there to truly get the whole picture. Acey thought that was the best ever he just laughed and laughed.

May 23rd 9:30 pm

What a day!!!! Acey is doing so good, its so fun to see him improve day to day. Since Acey is done with his testing and treatments he is now ready for rehab. Tomorrow we will be checking into Rehab where we will stay there for about one week and then we will be home! We are so excited to have Acey home again but very nervous at the same time. We are going to use this time at home to just rest from the hospital life and when he gains a little more strength we will come back to Utah University Hospital to finish his rehab. Today was a great day!

May 22nd 7:00pm

I know that I haven't been blogging lately, and that's because I've taken a few days to go home and be with the kids, for their last week of school activities. Acey is doing so good, he is now back on the Floor and out of ICU. Things are continuing to look promising. He is now able to lift up his left leg and left arm which he was unable to do before. He will have his trach in for awhile and is getting pretty good with sign language, that is how he's been communicating for the past week. There is a voice box that they can attach to his trach so he can talk but that will take some practice. I just want to give a shout out to a couple of people that helped me out in a big way a few days ago. Thank you so much and my car is running great!!!

May 16th 9:00 pm

The surgery went really well today, everything went as planned.

May 14th 5:41 pm

Just a quick update, Acey's tracheotomy was postpone until Monday. Everything else is the same as before no major changes to report.

May 13th 1:22 pm

Here is the latest news on our situation. . . . Acey still has pneumonia and is still in ICU, the pneumonia is improving a little everyday, he is still on the ventilator but on the very lowest setting. He also lifted his left leg and left hand a little yesterday and today which is amazing!! Tomorrow Acey is going in to have a Tracheotomy. There are several reasons why this is going to take place, the number one reason is to protect his airway. Since his mussels in his throat are so weak we need to make sure that his air way is always open and has easy access if needed. Acey and I are very anxious to have this done, once it's done he will be able to talk again (in a few days), and he will be able to have the tube out of his mouth, plus we are hoping that it will help clear up his pneumonia faster. We are moving in the right direction, so things here are looking up.

May 9th 7:55 pm

Good news we just got some of the results back from his spinal tap and Acey's white blood cells are down again! We are so excited!! The count is now 34, so we have a little bit further to go. Tomorrow Acey is going to try this new machine out that will help him communicate with us a little better. With his eyes he will be able to spell out words, not sure how it works, I'm just hoping it does.

May 9th 12:39 pm

We are still in the ICU and Acey is still on the ventilator. He now has pneumonia, and the lungs aren't looking too great at this time. He is breathing better but is still needing assistants from the respirator. Acey had a MRI the other day and there were no signs of new complications and everything look pretty much the same as before. Today he is going to have a spinal tap done to see what his white blood cell count is, we are hoping that his numbers are lower then 55.

May 6th 10:42 am

Here we go again. Acey had another down day, this time it's a little more serious. Yesterday he threw up and aspirated. Because of the aspiration he started having a difficult time breathing, and they couldn't get his vitals under control. They had x-ray come in to see how much went into his lungs, and then they took him to get an CAT scan to see if he had any blood clots that could have caused him to do this. Acey was moved back to the Neuro ICU. They then decided to put him on a ventilator. Not the best news, but at least Acey will be able to rest and not have to fight so hard to breath. Today they are running a lot more tests to see if his illness is progressing. I know that there are so many people concerned for Acey at this time, and time passes so slow for you at home that are waiting to hear the latest on how Acey is doing. I will try to update you all as often as I can. Thank you all and keep the prayers coming!

May 4th 7:50 pm

Lots of things happening today. I think we will be coming home soon!!! I can hardly stand it. We are going to have one more MRI and spinal tap just to make sure that the white blood cells are going down, and then we will be home. How soon? I'm not sure we are shooting for next Friday but of course no promises. Acey did get glasses today, they don't correct his eye sight 100% but they definitely help.

May 2nd 7:15 pm

On Friday Acey was moved again to rehab which is still in the University Hospital, this is our 10th room we've been in and hopefully our last. Our plan is to stay here in rehab for at least two weeks. After the two weeks are up Acey will be getting another spinal tap and MRI to make sure his white blood cells are continuing to go down. Right now we really have no idea where we will be after the two weeks are up, options are either here or back home. So time will soon tell us which will happen. Ace and I are both anxious to get home, so as soon as it's even possible I think that's the route we'll take. Not much has changed with Acey's condition his eyes are getting worse today but he does have a 4 1/2 hour eye appointment tomorrow at the Moran Center where we are hoping they will be able to make some glasses for him or at least help him in someway with his sight.