Besides all the University's in the country, all the specialist, and all the doctors. We would love to hear if anyone has any idea's of what this could be. We need all the help we can get. Prayer work too so keep praying!!! Thanks
Cytomegalovirus is what Kris Hubert said to check. Her sister knew someone with this. Same symptoms and is treatable. Thanks for the blog! We love you guys and are prayin for you! The Smith Family!
Jalyn, Acey and kids.... you are all in our hearts and on our minds constantly!!! We pray that the Dr.'s will find what it is that's making Acey so sick and help him get better quick!!!! Acey is one of the NICEST people I've ever met, so when you said he's being so nice to EVERYONE, I wasn't surprised!!! Hang in there and know that you are loved VERY MUCH!!!!
We Love you Acey and Jalyn and kiddos :)!!! Sure hope they find an answer soon and that your hearts will be comforted and you will be at peace with this trial! We sure have been thinking of you and praying for your family!!! It brings tears to my eyes just thinking about all of the "unknowns" you guys are going through! We love ya....
I just want you to know that we love you too! I was so shocked to hear this news and my heart goes out to your whole family! We love Acey and Jalyn and the kids so please know that we are thinking of you and that you are in our prayers! Acey is one of the nicest and funniest guys I know!! I love that he is being so positive and kind during this trial! I hope that the answers come soon!love the Samsons
Christa Lucero March 11 at 12:30pm Report Hello Steve:
Ed and I are praying for Acey and for you all. I just have to add my 2 cents worth. Have they tested him for Mercury or other metal poisoning? I have a friend that had all kinds of similar issues and it was the fillings in her teeth the mercury was poisioning her. It was awful. But she is alot better once they took out her metal fillings. Just a thought. You just never know.... It is not something that Dr's normally look for.
Acey and Jalyn you are in our thoughts and prayers we love you and pray you find an answer to help him soon...if there is anything you need please let us know. Steve is taking Jett wrestling in the morning and will video him...
I was talking to Andrew about Acey and he said his mom went through the same thing and it took them forever to find out what was wrong they ended up finding out that it was MS. Just a thought didn't know if he has been tested for that. My prayers are with you guys!
Thoughts and prayers of the Johnston Family are with you!! This swimteam family is rooting for you!! Hope you get things figured out. Love to all of you.
We love you!! It is times like this when I wish I was closer to help. You are continuelly in our thoughts and always in our prayers. We love you all so much!! Brings tears to my ears just typing this. Love you, April
Okay, Paige said that she thinks the treatment he is missing is Grandma's homemade bread. I think he might be having an adverse reaction to choking on Grandma's bread or maybe being given the heimlich by his wife while she was in the buff!? Or maybe that plastic poop Acey flushed down the toilet had some weird Chinese voodoo curse attached to it. Just kidding! We love you and are praying for you and let us know if we can do anything. Love, The Littlefields
I just want to say that your family is in our prayers and we have put you on our Churches prayer list. If there is anything in this world that you guys need please get a hold of us. God Bless You! Reshell,Cheyenne, Kaylah and Luke Bingham
We are also thinking of all of you and praying they find an answer. I hope you are able to keep your spirits and strength up too. God Bless. Charlece and Family
Jalyn, I've already talked to Mom, dad and Colette about this, but I wanted to show you this. It fits so perfect. http://en.wikipedia.org/wiki/Lyme_disease#Signs_and_symptoms
Look at the last paragraph under "Diagnosis" that is just one reason.
Alicia, that is interesting that you found information on Lyme disease. I told my mom and Colette that 2 nights ago I dreamt that Ace had a tick, but I didn't realize that lime disease could be as bad as it is described on that website. Very interesting.
It may be helpful to determine if there are any blood relatives who have had autoimmune disorders such as crohn's disease, ulcerative colitis, autoimmune hepatitis, hashimoto's thyroiditis, psoriasis, multiple sclerosis, lupus, mixed connective tissue disease, sjogren's disease, etc.
Dear Jalyn, I love ya babe! Pennsylvania is praying for you and Acey and the kiddos! Wish there was more I could do! Dear Acey, Get your butt better before I come see you in June!!!! That's an order, Mister!!!!! Love ya and am praying for you profusely!!! Janie
I was Collete's roommate several years ago. Y'all were always so nice to us and so much fun. You have such a beautiful family!I'm praying too that the Dr.s will figure this out soon and that Acey will recover quickly. My first thought too was lyme disease. I know this is silly but I saw a tv show where they suspected lyme disease but couldn't find the tick until they shaved his hair. Best wishes to you and your family.
Thank you all of all of your ideas. All of these have been checked and ruled out. Keep thinking and all those you know if they have ever heard of anything like this. And yes it's ok to post this blog on to others. The more people see this hopefully the better chance we have at beating this. Thanks!
Today was quite a day at the wrestling meet. Jet won all 4 of his matches.. I got them all videoed, but the one thing i wished i would of gootne on film.. When they have the kids paired up to wrestle they take them out an put themin a line along hte matt to wait there turn to wrestle.. anyway i cught a glance of Jett sitting in line with his arms folded and his eyes closed. it took me a few matches then it came to me he was praying before each match.. I asked him tonight if that is what he was doing and it was. He did really well. I will be down sometime next week to see ya, when this cold is officially gone. your in our prayers... STEVE
I know it's not the season but just as a thought, a person can contact West Nile Virus and not have symptoms for months. These symptoms can end up being life threatening and exhibit as neurological and physical illnesses. My thoughts are with you all during this very challenging time. Hang in there Acey. I know you have the strength and stubborness of your dad to get through this.
Might want to check out on the web. I looked it up this way and found several things it could be but two kinda point to me. I hope it is neither one. I looked up loss of speach hearing sight and eye movement. I came up with a brain tumor or cerebal palsy in children. I have twins that have cerebal palsy and they have the same symptons also one of my boys has a brain tumor and he is the one that is worse with the cerebal palsy. I will be praying for you and your family and tell Acey for me to stay strong and fight this. I dont know what hospital you guys are at or where you are from but St. Judes is Awesome and also Childrens Mercy but they are in my neck of the woods and Im in Kansas City Mo. ST judes does not make you pay for anything and they are very good at diagnosing things
Hi Jalyn and Acey, Our prayers are with you guys also. You really mean alot to me. Acey when you pass by in a group of people you are the only one that stops and says "Hi, How is it going Sue?" Just that little bit has long lasting effects on my heart. So you need to hurry and get better so I can drop by and see ya (harrass ya). Take care. Love you guys.
Jalyn we are thinking about you guys. Holli is keeping me informed. Our prayers are with you, your family and the doctors. Everything I was thinking has already been suggested. I'm asking around the hospital even to our Dr's to see if they've heard of something like this. Love, the brueggemans
I have no guesses of what Acey has but we are praying that someone figures it out quick so he can get better and go home! Love you all and take care! Debi
Hey, I was just wondering if anyone has tested the elk meat in your freezer? Maybe e-coli or something like that. It seems kind of ironic that the elk leave and Acey gets sick. Maybe it's God's punishment to him for poaching:) Stick to coaching, not poaching!!! We too have you in our thoughts and daily prayers. If someone doesn't mention Acey in their prayers, Kylie is sure to point it outto us. We pray for your strenght also Jalyn-it was exactly a year ago that our little Paxton was in the Primary Children's hospital and that was hard to go through, even though we knew what he had and were there for only 6 days. Stay positive!
Stay strong and keep positive, we are constantly thinking of you and praying they find out what is going on real soon. Acey hang in there and keep fighting. Love you guys.
Hey Jalyn, Just want to let you know Acey's name is in the temple down here, I'm sure many by now but that you have us in St. george also in your corner. Your family is in our thoughts and prayers, we hope to be hearing good things real soon. June.
Thanks for the blog. Please let Acey know that he (you and the kids too) are in my prayers.
ReplyDeleteAcey we are thinking of you and praying for you we love you
ReplyDeleteCytomegalovirus is what Kris Hubert said to check. Her sister knew someone with this. Same symptoms and is treatable. Thanks for the blog! We love you guys and are prayin for you! The Smith Family!
ReplyDeleteI wish I knew something/anything to help. Right now Ace and your family are constantly in my prayers. I love all of you!
ReplyDeleteOur love goes to all of you. Tell Acey we are praying for him. Everyone is so concerned and searching for answers. Thanks for the update. XO - Uhrig's
ReplyDeleteJalyn, Acey and kids.... you are all in our hearts and on our minds constantly!!! We pray that the Dr.'s will find what it is that's making Acey so sick and help him get better quick!!!! Acey is one of the NICEST people I've ever met, so when you said he's being so nice to EVERYONE, I wasn't surprised!!! Hang in there and know that you are loved VERY MUCH!!!!
ReplyDeleteWe Love you Acey and Jalyn and kiddos :)!!! Sure hope they find an answer soon and that your hearts will be comforted and you will be at peace with this trial! We sure have been thinking of you and praying for your family!!! It brings tears to my eyes just thinking about all of the "unknowns" you guys are going through! We love ya....
ReplyDeleteI just want you to know that we love you too! I was so shocked to hear this news and my heart goes out to your whole family! We love Acey and Jalyn and the kids so please know that we are thinking of you and that you are in our prayers! Acey is one of the nicest and funniest guys I know!! I love that he is being so positive and kind during this trial! I hope that the answers come soon!love the Samsons
ReplyDeleteAcey, Jalyn and the whole family....We are thinking of you guys and keeping you in our constant prayers. Hang in there!
ReplyDeleteAmy and Kevin Kerner
Nevada is praying for you Acey!
ReplyDeleteLove,
April Eddy (Telford)
Christa Lucero March 11 at 12:30pm Report
ReplyDeleteHello Steve:
Ed and I are praying for Acey and for you all. I just have to add my 2 cents worth. Have they tested him for Mercury or other metal poisoning? I have a friend that had all kinds of similar issues and it was the fillings in her teeth the mercury was poisioning her. It was awful. But she is alot better once they took out her metal fillings. Just a thought. You just never know.... It is not something that Dr's normally look for.
We will keep praying...
Christa Lucero..
Acey and Jalyn you are in our thoughts and prayers we love you and pray you find an answer to help him soon...if there is anything you need please let us know. Steve is taking Jett wrestling in the morning and will video him...
ReplyDeleteHave they considered Guillain-Barré Syndrome? We are praying for you in Utah too.
ReplyDeleteShellie (Hubert) Kipp
I was talking to Andrew about Acey and he said his mom went through the same thing and it took them forever to find out what was wrong they ended up finding out that it was MS. Just a thought didn't know if he has been tested for that. My prayers are with you guys!
ReplyDeleteThoughts and prayers of the Johnston Family are with you!! This swimteam family is rooting for you!! Hope you get things figured out. Love to all of you.
ReplyDeleteWe love you!! It is times like this when I wish I was closer to help. You are continuelly in our thoughts and always in our prayers. We love you all so much!! Brings tears to my ears just typing this.
ReplyDeleteLove you,
April
Acey, Jalyn, Jacey, Kade and Jett you guys are in our thoughts and prayers. Stay strong. We love you guys.
ReplyDeleteLyle & Janet Towne and family
Can I post this on my blog and help spread the word through the blogging community?
ReplyDeletehttp://chasingmynoah.blogspot.com/
Okay, Paige said that she thinks the treatment he is missing is Grandma's homemade bread. I think he might be having an adverse reaction to choking on Grandma's bread or maybe being given the heimlich by his wife while she was in the buff!? Or maybe that plastic poop Acey flushed down the toilet had some weird Chinese voodoo curse attached to it. Just kidding! We love you and are praying for you and let us know if we can do anything.
ReplyDeleteLove,
The Littlefields
I just want to say that your family is in our prayers and we have put you on our Churches prayer list. If there is anything in this world that you guys need please get a hold of us. God Bless You!
ReplyDeleteReshell,Cheyenne, Kaylah and Luke Bingham
We are also thinking of all of you and praying they find an answer. I hope you are able to keep your spirits and strength up too. God Bless.
ReplyDeleteCharlece and Family
Jalyn, I've already talked to Mom, dad and Colette about this, but I wanted to show you this. It fits so perfect. http://en.wikipedia.org/wiki/Lyme_disease#Signs_and_symptoms
ReplyDeleteLook at the last paragraph under "Diagnosis" that is just one reason.
Love ya Ace!
Alicia, that is interesting that you found information on Lyme disease. I told my mom and Colette that 2 nights ago I dreamt that Ace had a tick, but I didn't realize that lime disease could be as bad as it is described on that website. Very interesting.
ReplyDeleteIt may be helpful to determine if there are any blood relatives who have had autoimmune disorders such as crohn's disease, ulcerative colitis, autoimmune hepatitis, hashimoto's thyroiditis, psoriasis, multiple sclerosis, lupus, mixed connective tissue disease, sjogren's disease, etc.
ReplyDelete-david roman renner, md
Dear Jalyn,
ReplyDeleteI love ya babe! Pennsylvania is praying for you and Acey and the kiddos! Wish there was more I could do!
Dear Acey,
Get your butt better before I come see you in June!!!! That's an order, Mister!!!!! Love ya and am praying for you profusely!!!
Janie
Hi Jalyn and Acey,
ReplyDeleteI was Collete's roommate several years ago. Y'all were always so nice to us and so much fun. You have such a beautiful family!I'm praying too that the Dr.s will figure this out soon and that Acey will recover quickly. My first thought too was lyme disease. I know this is silly but I saw a tv show where they suspected lyme disease but couldn't find the tick until they shaved his hair. Best wishes to you and your family.
Janell
Thank you all of all of your ideas. All of these have been checked and ruled out. Keep thinking and all those you know if they have ever heard of anything like this. And yes it's ok to post this blog on to others. The more people see this hopefully the better chance we have at beating this. Thanks!
ReplyDeleteJalyn
What is the thyroid problem that runs in the family? I'll call my doctor and ask him what exactly my thyroid problem is.
ReplyDeleteI checked with my doctor and I do have the hashimoto thytoiditis or whatever it may be spelled
ReplyDeleteSending prayers from Indiana for Acey and the Shaw family. We're praying for some answers soon!
ReplyDeleteNancy (Power) Allen and family
This comment has been removed by the author.
ReplyDeleteToday was quite a day at the wrestling meet. Jet won all 4 of his matches.. I got them all videoed, but the one thing i wished i would of gootne on film.. When they have the kids paired up to wrestle they take them out an put themin a line along hte matt to wait there turn to wrestle.. anyway i cught a glance of Jett sitting in line with his arms folded and his eyes closed. it took me a few matches then it came to me he was praying before each match.. I asked him tonight if that is what he was doing and it was. He did really well. I will be down sometime next week to see ya, when this cold is officially gone. your in our prayers... STEVE
ReplyDeleteI know it's not the season but just as a thought, a person can contact West Nile Virus and not have symptoms for months. These symptoms can end up being life threatening and exhibit as neurological and physical illnesses. My thoughts are with you all during this very challenging time. Hang in there Acey. I know you have the strength and stubborness of your dad to get through this.
ReplyDeleteMight want to check out on the web. I looked it up this way and found several things it could be but two kinda point to me. I hope it is neither one. I looked up loss of speach hearing sight and eye movement. I came up with a brain tumor or cerebal palsy in children. I have twins that have cerebal palsy and they have the same symptons also one of my boys has a brain tumor and he is the one that is worse with the cerebal palsy. I will be praying for you and your family and tell Acey for me to stay strong and fight this. I dont know what hospital you guys are at or where you are from but St. Judes is Awesome and also Childrens Mercy but they are in my neck of the woods and Im in Kansas City Mo. ST judes does not make you pay for anything and they are very good at diagnosing things
ReplyDeleteHi Jalyn and Acey,
ReplyDeleteOur prayers are with you guys also. You really mean alot to me. Acey when you pass by in a group of people you are the only one that stops and says "Hi, How is it going Sue?" Just that little bit has long lasting effects on my heart. So you need to hurry and get better so I can drop by and see ya (harrass ya). Take care. Love you guys.
Sue Flores and girls
Brucellosis or Whipple's Disease?
ReplyDeleteWe will keep looking and praying.
Get better soon Ace.
Jalyn we are thinking about you guys. Holli is keeping me informed. Our prayers are with you, your family and the doctors. Everything I was thinking has already been suggested. I'm asking around the hospital even to our Dr's to see if they've heard of something like this.
ReplyDeleteLove, the brueggemans
I have no guesses of what Acey has but we are praying that someone figures it out quick so he can get better and go home! Love you all and take care! Debi
ReplyDeleteHey, I was just wondering if anyone has tested the elk meat in your freezer? Maybe e-coli or something like that. It seems kind of ironic that the elk leave and Acey gets sick. Maybe it's God's punishment to him for poaching:) Stick to coaching, not poaching!!! We too have you in our thoughts and daily prayers. If someone doesn't mention Acey in their prayers, Kylie is sure to point it outto us. We pray for your strenght also Jalyn-it was exactly a year ago that our little Paxton was in the Primary Children's hospital and that was hard to go through, even though we knew what he had and were there for only 6 days. Stay positive!
ReplyDeleteLove,
JoLyn Churchill
Hope you had a good day today, Acey. Keep your spirits up.
ReplyDeleteBy the way, I posted yesterday here on "Help Needed". I don't see the post, today? I don't know what might have happened.
Again, God Speed and will keep checking the blog for updates. Will continue with our prayers. :)
My post yesterday was on:
ReplyDeleteLymphocytic Choriomeningitis
Hope that might help. :)
Stay strong and keep positive, we are constantly thinking of you and praying they find out what is going on real soon. Acey hang in there and keep fighting. Love you guys.
ReplyDeleteLyle and Janet Towne and family
Hey Jalyn,
ReplyDeleteJust want to let you know Acey's name is in the temple down here, I'm sure many by now but that you have us in St. george also in your corner. Your family is in our thoughts and prayers, we hope to be hearing good things real soon.
June.