Well the Doctor just come back to give us some updates. The scan showed that there was nothing blocking or on his colon. But some blood work came back and they found that he has an extremely low in vitamin B-1. So they are pumping him full of vitamin B1 which is called Thiamine which helps with his balance and his eyes from jumping around. We are hoping that this will improve his sight and balance. The other thing that they are looking at is called Disseminated Encephalomyelitis which is shorten as A.D.E.M. which is an acute condition that mimics multiple sclerosis. This is just a idea they are looking at they will only go with this after they have ruled out everything else. There is still a chance that they are going do the brain biopsy tomorrow night or the Tuesday morning. If he doesn't make huge improvement that may be what the doctor will recommend.
Jayln, Ace and family! We are praying with you and for you! Sending all our love your way! Stay strong and keep on fighting Acey!! Keep updating the blog Jalyn - we'll be checking it often! HUGS!!!!! Sarah (Lasley) Arnold
ReplyDeleteAcey, Jalyn, & Fam, We love you guys tons. You are in all our prayers. I was talking to Colleen tuesday morning, telling her I wanted to call and put your name in the temple,she asked me what one, I told her Twin. She said ,"no call and put it in the Jordan River they have sessions starting every 20 minutes"!! Love you guys Mindy & fam
ReplyDeleteThanks so much for the updates! We are all praying and constantly thinking about you guys! That is awesome your names are in so many Temples!! Shon and Carla were putting your names in the Billings Montana Temple. Our prayers and fasts are for you and the doctors, that they will figure it out soon! Hang in there! We love you guys!
ReplyDeleteanything with a name is a step in the right direction. Good luck this week. hopefully the brain biopsy will be unnecessary. we love you and continue to pray for you all.
ReplyDeletejennie
Were praying for you Acey and your family stay strong and keep fighting!
ReplyDeleteThe McConnell Family
I know this is really gross.... And sounds kind of silly considering the tests theu have run on Acey, but vitamin B deficencies are usually the out come of tape worm. Just throwing that out there..... Love you guys! Praying for both of you, the kids and the doctors
ReplyDeleteWe are still praying for you guys. It was so nice to see you guys and just give you some love. Thanks for the updates. If you need anything please let us know and we will get it done.
ReplyDeleteAcey & Family I just wanted you to know my prayers are with at this time
ReplyDeleteAcey and family~ We are praying for you!
ReplyDeleteAcey, Don't get too used to this loafing around. It won't last! You'll be up and doing what needs to be done. Remember the tender mercies of the Lord and those who care about you. We want you and Jalyn back home with us. I can truly say I know what the support of family, friends and the Lord means in times of uncertainly. Embrace the love and keep the faith. You do your part and God will do His. Jalyn, don't let Acey get behind in his scripture reading. He may need you to read them to him for a while. I enjoyed reading to Steve while we were at the hospital. I pray for you, your family, and all who are caring for you. Cheri Southwick
ReplyDeleteOk this may be off the wall...but my dad said that his father had similar symptoms many years ago and almost died...it was a major adverse reaction to a FLU SHOT!! Just a thought. Hope all goes well and that they figure it out soon!! Lots of love and prayers from the Johnston family!!
ReplyDelete