Update March 22nd 9:21 am

Sorry about no post yesterday the Internet was down. So, I'll update you on the last two days. The doctors have let me know more then once that there were going to be ups and downs, well yesterday we had both. I'll start with Sunday, he was laughing and joking it was like we were well on our way to recovery, and then Monday hit us hard, Acey was really tired and not feeling as well as the day before. The physical and occupational therapist came in and worked with him for awhile and decided to see if he could stand and walk. He went about 10 steps with help from 3 people, he had to rest for awhile then made his way back to his bed. He said that he couldn't believe it would be so hard to walk. His balance is still very poor and his eyes are still jumping around which doesn't help. His head is starting to tremor every once in awhile, and the Doctors are not sure why this is happening, if it's because of being tried or if it has to do with his brain injury, so we are keeping a close eye on that. Yesterday early evening the Doctor came back to see Acey and access him once more, they told us that there is still a chance that there is permanent damage done, and that he may not gain back his motor skills. This was not the news any of us wanted to hear. They said that in the next couple of months we would have a better understanding of the damage that had been done and what long term effects there will be if any.

So today is a whole new day and lots going on. Acey is getting another spinal tap to see if the infection is gone, and possibly having another MRI to look at his brain and see if the swelling is getting any better. He is also heading over to the Moran building to have some tests done on his eyes to make sure that he is not losing anymore of his sight, and hopefully they can figure out some kind of glasses that will help him see better.

I told Acey today that we needed to make a list of all the blessings that we do have, sometimes we just have to stop and look at the bigger picture (which at times is not real easy to do). But it didn't take long to start listing all the blessing that we do have, Acey still alive, he has a sharp mind he is still strong, he is not blind, he is a hard worker, we have 3 wonderful kids who are healthy, we have the gospel in our lives and know that our Heavenly Father is watching us and we are not alone, that we are a family forever and this is just another learning opportunity, Acey and I have a wonderful marriage and we are best friends and are growing closer to each other everyday. While being in this hospital we have seen a lot of tragedies around us and we are so fortunate for the knowledge that no matter what we will always have each other, and that our family will be together forever.

Because of Acey's rare condition, Acey and I have to decided to keep him here for his rehabilitation. University Hospital is well equipped to handle his needs and specialize in Neuro rehabilitation. Plus all of the specialist are right here and they are watching his progress and helping us all along the way. Even though he will not be close to home we feel this will give Acey the best chances of regaining mobility.